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AVISO LEGAL

FUNDACION LEUCODISTROFIA TUBB4A

C.I.F. G05356522

Calle Méndez Nuñez, 16

ES 41620 Marchena (SEVILLA) Spain

info@fundaciontubb4a.org

LEGISLACIÓN

Con carácter general las relaciones entre Fundación Leucodistrofia TUBB4A con los Usuarios de sus servicios telemáticos, presentes en la Web, se encuentran sometidas a la legislación y jurisdicción españolas.

Fundación Leucodistrofia TUBB4A se reserva el derecho de efectuar sin previo aviso las modificaciones que considere oportunas en su Web, pudiendo cambiar, suprimir o añadir tanto los contenidos y servicios que se presten a través de la misma como la forma en la que éstos aparezcan presentados o localizados en sus servidores.

PROPIEDAD INTELECTUAL E INDUSTRIAL

Todos los contenidos del sitio web (incluyendo, sin carácter limitativo, bases de datos, imágenes y fotografías, dibujos, gráficos y archivos de texto) son propiedad de Fundación Leucodistrofia TUBB4A o de los proveedores de contenidos, habiendo sido, en este último caso, objeto de licencia o cesión por parte de los mismos, y están protegidos por las normas nacionales o internacionales de propiedad intelectual. La recopilación, diseño, ordenación y montaje de todo el contenido del sitio Web es propiedad exclusiva de Fundación Leucodistrofia TUBB4A y se encuentra protegida por las normas nacionales e internacionales de propiedad industrial e intelectual.

Las marcas, rótulos, signos distintivos o logos del sitio web son titularidad de Fundación Leucodistrofia TUBB4A y están protegidos por los correspondientes derechos de propiedad intelectual e industrial.

Los textos, datos y dibujos gráficos son propiedad de Fundación Leucodistrofia TUBB4A o de las entidades proveedoras de información, no pudiendo ser objeto de ulterior modificación, copia, transformación, alteración, reproducción, adaptación o traducción por parte de terceros, sin la expresa autorización por parte del titular de dicho contenido. La puesta a disposición de los textos, datos y dibujos gráficos no implica, en ningún caso, la cesión de su titularidad ola concesión de un derecho de explotación, reproducción, difusión, transformación, distribución, o transmisión a su favor, distinto del derecho de uso que comporta la utilización legítima de la web.

CONTENIDO DE LA WEB Y ENLACES (LINKS)

Fundación Leucodistrofia TUBB4A no se responsabiliza del mal uso que se realice de los contenidos de sus páginas Web, siendo exclusiva responsabilidad de la persona que accede a ellos o los utilice.

Los titulares de otros sitios Web que deseen crear un hipervínculo, se comprometen a no establecer enlaces a sitios Web en los que no aparezca el logotipo de Fundación Leucodistrofia TUBB4A y a no realizar manifestaciones falsas, inexactas o incorrectas, que puedan inducir a error o, en general, que sean contrarias a las leyes.

Los titulares de otros sitios Web que deseen crear un hipervínculo a la web se comprometen, asimismo, a no establecer hipervínculos con sitios Web que contengan contenidos, manifestaciones o propaganda de índole racista, xenófoba, pornográfica, de apología del terrorismo y, en general, puedan perjudicar de cualquier modo el buen nombre o la imagen de Fundación Leucodistrofia TUBB4A.

La inclusión de hipervínculos en sitios webs no implica necesariamente que Fundación Leucodistrofia TUBB4A mantenga relaciones con el titular del sitio Web en la que se establezca el enlace.

La presencia de hipervínculos en las webs tiene una finalidad meramente informativa, motivo por el cual, Fundación Leucodistrofia TUBB4A no se responsabiliza ni otorga garantía de ninguna naturaleza, ni expresa ni implícita respecto a la idoneidad, calidad, características, procedencia, comercialización o cualquier otro aspecto de la información, productos y/o servicios.

La exención de responsabilidad establecida en los apartados anteriores no operará en el supuesto de que el proveedor de contenidos al que se enlace o cuya localización se facilite actúe bajo la dirección, autoridad o control del prestador que facilite la localización de esos contenidos.

MANIFESTACIONES

Fundación LeucodistrofiabTUBB4A manifiesta que este sitio Web dispone de la tecnología adecuada para permitir el acceso y utilización del mismo. No obstante, no se responsabiliza por la eventual existencia de virus u otros elementos nocivos, introducidos por cualquier medio o por cualquier tercero, que puedan producir alteraciones en sus sistemas informáticos.

El sitio web podría contener inexactitudes, omisiones relevantes, imprecisiones o erratas. Fundación Leucodistrofia TUBB4A no garantiza, en ningún caso, la veracidad, exactitud y actualidad de los datos contenidos en su sitio Web. El usuario que accede a la web exonera a Fundación Leucodistrofia TUBB4A de cualquier responsabilidad en relación a la fiabilidad, utilidad o falsas expectativas que este sitio Web pudiera producirle.

LIMITACIÓN DE RESPONSABILIDAD

Fundación Leucodistrofia TUBB4A no ofrece garantías de ninguna clase en cuanto al funcionamiento de los sitios webs o a la información contenida en el mismo. no será responsable de los daños o perjuicios, de cualquier índole, que puedan derivarse del uso del sitio web.

Fundación Leucodistrofia TUBB4A excluye toda responsabilidad por la licitud, contenido y calidad de los datos e informaciones ofrecidos por terceras entidades a través del sitio web.

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Privacy Policy

What information do we collect?

We collect information from you when you register on our site or place an order. When ordering or registering on our site, as appropriate, you may be asked to enter your: name, e-mail address or mailing address.

What do we use your information for?

Any of the information we collect from you may be used in one of the following ways: To personalize your experience (your information helps us to better respond to your individual needs) To improve our website (we continually strive to improve our website offerings based on the information and feedback we receive from you) To improve customer service (your information helps us to more effectively respond to your customer service requests and support needs) To process transactions Your information, whether public or private, will not be sold, exchanged, transferred, or given to any other company for any reason whatsoever, without your consent, other than for the express purpose of delivering the purchased product or service requested. To administer a contest, promotion, survey or other site feature To send periodic emails The email address you provide for order processing, will only be used to send you information and updates pertaining to your order.

How do we protect your information?

We implement a variety of security measures to maintain the safety of your personal information when you place an order or enter, submit, or access your personal information. We offer the use of a secure server. All supplied sensitive/credit information is transmitted via Secure Socket Layer (SSL) technology and then encrypted into our Payment gateway providers database only to be accessible by those authorized with special access rights to such systems, and are required to?keep the information confidential. After a transaction, your private information (credit cards, social security numbers, financials, etc.) will not be kept on file for more than 60 days.

Do we use cookies?

Yes (Cookies are small files that a site or its service provider transfers to your computers hard drive through your Web browser (if you allow) that enables the sites or service providers systems to recognize your browser and capture and remember certain information We use cookies to help us remember and process the items in your shopping cart, understand and save your preferences for future visits, keep track of advertisements and compile aggregate data about site traffic and site interaction so that we can offer better site experiences and tools in the future. We may contract with third-party service providers to assist us in better understanding our site visitors. These service providers are not permitted to use the information collected on our behalf except to help us conduct and improve our business. If you prefer, you can choose to have your computer warn you each time a cookie is being sent, or you can choose to turn off all cookies via your browser settings. Like most websites, if you turn your cookies off, some of our services may not function properly. However, you can still place orders by contacting customer service. Google Analytics We use Google Analytics on our sites for anonymous reporting of site usage and for advertising on the site. If you would like to opt-out of Google Analytics monitoring your behaviour on our sites please use this link (https://tools.google.com/dlpage/gaoptout/)

Do we disclose any information to outside parties?

We do not sell, trade, or otherwise transfer to outside parties your personally identifiable information. This does not include trusted third parties who assist us in operating our website, conducting our business, or servicing you, so long as those parties agree to keep this information confidential. We may also release your information when we believe release is appropriate to comply with the law, enforce our site policies, or protect ours or others rights, property, or safety. However, non-personally identifiable visitor information may be provided to other parties for marketing, advertising, or other uses.

Registration

The minimum information we need to register you is your name, email address and a password. We will ask you more questions for different services, including sales promotions. Unless we say otherwise, you have to answer all the registration questions. We may also ask some other, voluntary questions during registration for certain services (for example, professional networks) so we can gain a clearer understanding of who you are. This also allows us to personalise services for you. To assist us in our marketing, in addition to the data that you provide to us if you register, we may also obtain data from trusted third parties to help us understand what you might be interested in. This ‘profiling’ information is produced from a variety of sources, including publicly available data (such as the electoral roll) or from sources such as surveys and polls where you have given your permission for your data to be shared. You can choose not to have such data shared with the Guardian from these sources by logging into your account and changing the settings in the privacy section. After you have registered, and with your permission, we may send you emails we think may interest you. Newsletters may be personalised based on what you have been reading on theguardian.com. At any time you can decide not to receive these emails and will be able to ‘unsubscribe’. Logging in using social networking credentials If you log-in to our sites using a Facebook log-in, you are granting permission to Facebook to share your user details with us. This will include your name, email address, date of birth and location which will then be used to form a Guardian identity. You can also use your picture from Facebook as part of your profile. This will also allow us and Facebook to share your, networks, user ID and any other information you choose to share according to your Facebook account settings. If you remove the Guardian app from your Facebook settings, we will no longer have access to this information. If you log-in to our sites using a Google log-in, you grant permission to Google to share your user details with us. This will include your name, email address, date of birth, sex and location which we will then use to form a Guardian identity. You may use your picture from Google as part of your profile. This also allows us to share your networks, user ID and any other information you choose to share according to your Google account settings. If you remove the Guardian from your Google settings, we will no longer have access to this information. If you log-in to our sites using a twitter log-in, we receive your avatar (the small picture that appears next to your tweets) and twitter username.

Children’s Online Privacy Protection Act Compliance

We are in compliance with the requirements of COPPA (Childrens Online Privacy Protection Act), we do not collect any information from anyone under 13 years of age. Our website, products and services are all directed to people who are at least 13 years old or older.

Updating your personal information

We offer a ‘My details’ page (also known as Dashboard), where you can update your personal information at any time, and change your marketing preferences. You can get to this page from most pages on the site – simply click on the ‘My details’ link at the top of the screen when you are signed in.

Online Privacy Policy Only

This online privacy policy applies only to information collected through our website and not to information collected offline.

Your Consent

By using our site, you consent to our privacy policy.

Changes to our Privacy Policy

If we decide to change our privacy policy, we will post those changes on this page.
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